Our Research Work

Various people sitting on chairs around a big poster on the floor. The poster has the timeline of what Patient Focused Drug Development looks like. They are applauding the work.

We conduct our own research on issues related to asthma, allergies, eczema and related conditions. Our research aims to find answers to questions that are most important to patients and caregivers.

Our work is also used to inform policy development and patient engagement in research.

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The North Star of our research is to make study results meaningful and relevant to the full asthma and allergy community. We undertake focused projects that include the perspectives of underserved populations.

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Our current and past research work

The following programs are some of our work.

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Corticosteroid exposure and cumulative effects in patients with eczema

Many people living with eczema use topical corticosteroids to help manage their symptoms. Prolonged topical corticosteroid use throughout a person’s lifetime can increase their risk of negative outcomes. This global patient survey was funded by Allergy & Asthma Network and the International Topical Steroid Awareness Network (ITSAN) with grants from Dermira/Lilly and Sanofi/Regeneron.

The survey evaluated corticosteroid exposure and its impact on people living with eczema. Among other conclusions, it was found that prolonged corticosteroid exposure throughout a person’s lifetime placed them at risk of negative outcomes.

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Not One More Life Trusted Messengers Virtual Asthma Coaching Program

People in under-represented communities across the United States struggle with gaining access to quality healthcare. We need to change this reality. This project aims to improve access for Black Americans, Hispanic/Latino Americans, Native Americans and/or low-income families who experience social and economic barriers to quality healthcare.

OurTrusted Messengers programnow offers free and easy access to health professionals using virtual asthma coaching.

A virtual asthma visit with this program allows you to connect with a health coach or doctor using your phone or computer. The virtual asthma education program is for people living in the United States with asthma and COPD.

In 2022, Allergy & Asthma Network provided free lung screenings and asthma education to 2,500 people. Those screened and found to be at high risk for poor asthma control were enrolled in a 6-week virtual asthma coaching program. Results of the program show improved asthma disease self-management as well as improved asthma outcomes.

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Unidos Hablemos de… Asthma & COVID-19 Conference

We hosted a six-session virtual conference series funded by a Eugene Washington Engagement Award by the Patient-Centered Outcomes Research Institute (PCORI). The series was designed to:

1) inform emerging research needs as it relates to Hispanic and Latino patients with asthma and COVID-19; and

2)使用结果来更好的教育西班牙和意大利no patients with asthma to become participants in all aspects of patient-centered outcomes research.

➤ Unidos Hablemos Conference in English

➤ Unidos Hablemos Conference in Spanish

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Black People Like Me

We hosted a six-sessionBlack People Like me virtual conference seriesfunded by a Eugene Washington Engagement Award by the Patient-Centered Outcomes Research Institute (PCORI).

The series was designed to:

1) inform emerging research needs as it relates to African American patients with asthma; and

2)使用的结果s to better educate African American patients with asthma to become participants in all aspects of patient-centered outcomes research.

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Impact of social determinants on the burden of asthma and eczema: results from a US patient survey

Asthma and eczema can impact your ability to take part in your work, school, play or worship activities. But little is known about how well patients understand these conditions and medical care. We decided to gain a better understanding of these unknowns.

In 2021, Allergy & Asthma Network worked with a group of allergists toconduct a survey studyto uncover what people living with asthma and/or eczema think about their medical care. The study found that health literacy was oftentimes a barrier to asthma and eczema care among Black and Hispanic/Latino communities.

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Open Asthma

The Observations of Patient Experience in the Nation(OPEN) Asthma Surveywas conducted and sponsored by Boehringer Ingelheim Pharmaceuticals, Inc. The study explored current attitudes of healthcare providers and patients about asthma control.

The goal of the study was to identify areas for improvement. The survey included people living with asthma who were treated with daily prescription medicine, as well as healthcare providers who treat patients with asthma.